In 1980, she co-founded the Canadian Familial Polyposis Registry and served as Clinical Co-ordinator until her retirement in 2013.

She is Past-President of the Collaborative Group of the Americas on Inherited Colorectal Cancer and attended the first meeting of the Leeds Castle Polyposis group in 1985. She served on Council of LCPG (1999-2003) and InSiGHT (2003-2005).

Associate Professor,
Hvidovre University Hospital, Denmark. He attended the first meeting of the Leeds Castle Polyposis Group in 1985 and was Chair 1991-3.

Visiting Professor, the Department of Digestive Tract and General Surgery, Saitama Medical Center, Saitama Medical University. Graduated from Medical School of Tokyo Medical and Dental University in 1970.
Trained at Musashino Red Cross Hospital and Tokyo Medical and Dental University.
Member of Leeds Castle Polyposis Group and InSiGHT.
2005 – 2007, The 2nd chairman of InSiGHT: The scientific meeting was held in Yokohama in March 2007.

Professor and Chief of Colorectal Surgery at Helsinki University Hospital, retired 2014. He founded the Finnish Polyposis Registry in 1983 and undertook important research in the genetic background of Lynch syndrome, Peutz-Jeghers syndrome and juvenile polyposis.

He was present at the first meeting of the Leeds Castle Polyposis group in 1985 and was also a member of ICG-HNPCC and of InSiGHT.

Kay Neale worked at the Polyposis Registry at St Mark’s Hospital, UK from 1984 until her retirement in 2016. She attended the first meeting of the Leeds Castle Polyposis Group (LCPG) in 1985 and was the Honorary Secretary of the LCPG and then InSiGHT.

Juul Wijnen worked at the Department of Human Genetics of Leiden University from 1976 until his retirement in 2017. He completed his PhD in 1999 with the thesis 'Molecular Genetics of Hereditary Non-Polyposis Coloretal Cancer'. At that time the research group had collected DNA and clinical information of one of the largest cohorts of FAP- and HNPCC families. He worked with Prof Meera Khan, Prof Riccardo Fodde, Prof Hans Vasen and Prof Hans Morreau in an effort to unravel the genetics of FAP and HNPCC.

He was an active member of the ICG-HNPCC and then InSiGHT, and attended all meetings from 1996.

Hans Vasen undertook a PhD on 'Screening for hereditary cancer', and is now Medical Director of The Dutch Hereditary Cancer Registry, Leiden, The Netherlands, Professor in Hereditary Cancer at the University of Leiden and Editor-in-Chief of Familial Cancer.

He was a co-founder of ICG-HNPCC and Chair of LCPG 1995-97, when he hosted the first joint meeting of the organisations. He became Co-Administrative Director of InSiGHT on its formation 2005-13.

Robin Phillips was a Consultant Surgeon at St Mark’s Hospital in 1987-2017, where he was Director of the Polyposis Registry. He was a Council member of LCPG, and subsequently Co-Administrative Director of InSiGHT 2005-13